EMPOWERING PATIENTS & FAMILIES

Patient engagement is key to ensuring that research explores the questions and finds solutions that are most important to patients. In Patient-Centered Research, stakeholders are individuals, organizations, or communities that have a direct interest in the process and outcomes of a project.

Patients are considered equal stakeholders in research teams alongside researchers, doctors, and others who will be impacted by the findings. We need the voices of patients with diverse backgrounds and experiences to inform research that is equitable and representative.

Watch this short video to learn more about how the patient experience can inform research.

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EMPOWERING PATIENTS & FAMILIES
REACHNET

REACHNET

  • REACHnet is a partnership among different healthcare entities that connects patients, researchers, and healthcare providers to conduct patient-centered research.  We want to make it easier for patients and their families to collaborate with healthcare professionals and researchers. To do this, REACHnet provides resources and spaces like the Health in Our Hands Community to support patients’ involvement in research projects as participants or advisors to research teams.

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  • Launched in March 2014, REACHnet is a partnership between the Louisiana Public Health Institute (LPHI) and several partner health systems in Louisiana, Texas, and California. REACHnet is a clinical data network that provides access to de-identified electronic health data for more than 8 million patients. Access to this data can allow researchers to have a better understanding of how health conditions and interventions impact people from diverse backgrounds.

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  • Because REACHnet works with a diverse patient population served by our partner health systems, we are able to support studies that recruit a highly representative sample of participants, including patients who have been traditionally under-represented in research. This helps produce more informative evidence that can meaningfully inform healthcare decision-making. We engage researchers, healthcare partners, a variety of interested professionals, and patients and their families–just like you.

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GET INVOLVED

Do you want to be involved in studying ways to improve healthcare for you or your loved ones? By becoming a trained Health in Our Hands Community Partner and sharing your story, you can help researchers discover better treatments by sharing your experiences and what matters to you. 

Health in our Hands Community Partners will:

  • Receive training in principles of patient engagement;
  • Join other individuals with an interest in improving medical care for health conditions;
  • Participate in virtual quarterly meetings with researchers and other members of the Health in Our Hands community;
  • Partner with researchers to ensure projects include the patient perspective;
  • Provide valuable insight and input to shape research projects.

You can share your interest in becoming a Health in Our Hands Community Partner by completing this form.

If you would like more information about Health in Our Hands, email Engagement Manager, Upama Aktaruzzaman, at uaktaruzzaman@lphi.org.

 

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GET INVOLVED

YOUR VOICE IN ACTION

Since 2014, REACHnet has centered Patient Engagement across various projects, including through the Health in Our Hands Community. Some projects that patients like you have been partners on are:

Louisiana Experiment to Address Diabetes: Zero-Dollar Copayment Project (LEAD-ZDC): This study examines if a policy intervention of lowering out of pocket costs for select medications for patients with diabetes impacts health outcomes. Learn more about this study here.

Aspirin Dosing: A Patient-centric Trial Assessing Benefits and Long-Term Effectiveness (ADAPTABLE): The purpose of the ADAPTABLE study was to find the best dose of aspirin, 81 mg or 325 mg, for people with known or existing heart disease to prevent death or another heart attack or stroke. You can learn more about the study findings here You can hear from a patient partner on ADAPTABLE here.  

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YOUR VOICE IN ACTION