Health in Our Hands (HiOH) seeks knowledge, expertise, and input from a collective of engaged patients to influence research that will drive innovations in healthcare. Health in Our Hands is a community that:


  • Recognizes individuals as the experts of their own health experience.
  • Brings patients, doctors, and researchers together to advance patient-centered research.
  • Provides opportunities to inform the research community about health issues that are important to patients.
  • Values diversity, recognizing that each person has unique experiences with their own health and healthcare.

Health in Our Hands Community Partners


The Health in Our Hands (HiOH) Community is a network of patients with a vested interest in their own health and the health of their communities. We are looking for engaged individuals who want to help healthcare providers and researchers find effective treatments and cures for pressing health issues. We greatly the diverse backgrounds and unique experiences of patients like you.

HiOH Community Partners will have the opportunity to: 


  • Receive training on the principles of patient engagement in research.
  • Connect with peers and share experiences within the HiOH Community.
  • Participate in virtual meetings with researchers and other members of the HiOH Community to learn about current projects, provide patient perspectives, and guide research initiatives. 
  • Regularly receive information about new studies, opportunities to get involved, and research updates. 


HiOH Community Partners will receive a $50 honorarium for attendance and participation in each virtual meeting. 


How do I become a HiOH Community Partner?


If you are interested in becoming a Community Partner, please fill out this interest form. We strive to build a community of patient stakeholders with diverse backgrounds. Applicants must be age 18+ and have access to email and Zoom. The HiOH team is available to provide technological assistance if needed. 


Eligible candidates will be invited to complete a self-guided training series about patient-centered research, clinical research fundamentals, and the importance of stakeholder engagement. This will be followed by a live orientation on Zoom where participants will connect with their peers and facilitators, learn about the history and goals of HiOH, and get acquainted with the HiOH community. These steps serve as crucial preparation for our Community Partners to participate in research. 


After completing all orientation and training materials, individuals will become certified HiOH Community Partners. 


For inquiries about Health in Our Hands, please contact info@hioh.org. Please view the frequently asked questions (FAQ) below for additional information. 


FAQ


  • What are the benefits of becoming a HiOH Community Partner?

    • Opportunities to directly impact meaningful research. 
    • Free and comprehensive training in research fundamentals.
    • Connection with a community of like-minded and motivated change-makers.

  • What are the steps to becoming a HiOH Community Partner?

    We welcome Community Partners from all backgrounds and experiences. We want your unique voice to be represented. 


    Eligible applicants should be over 18 years of age and have reliable access to e-mail and Zoom. The HiOH team is available to provide technological assistance. 


    There are 3 steps to the Health in Our Hands orientation process: 


    1. Complete a self-guided research fundamentals training online provided by the Patient-Centered Outcomes Research Institute (PCORI).
    2. Attend a 1-hour orientation meeting led by the Health in Our Hands team. 
    3. Sign our Community Partner agreement and receive your Health in Our Hands Community Partner Certificate!

  • Once I become a HiOH Community Partner, what is the expected commitment?

    As a Community Partner, you can expect to:


    • Participate in virtual Zoom meetings every 2-3 months to connect with other HiOH members and researchers. 
    • Receive monthly email communications about research news, meetings and events, and community updates. 
    • Use your individual experiences and expertise to provide input on research and feedback yo help us improve the HiOH experience. 

    Participation in HiOH events is optional, even as a Community Partner. We encourage our members to individualize their time commitments and participate in a way that is meaningful, yet realistic, to their daily lives. 

  • Will I be compensated for my time?

    Your time and perspective are incredibly valuable to us. All attendees will receive a $50 honorarium for their participation in each meeting. Other opportunities to provide feedback on research projects may be compensated.

  • How is Health in Our Hands funded?

    Health in Our Hands is an initiative of the Research Action for Health Network (REACHnet). REACHnet is one of eight clinical research networks (CRNs) nationwide in PCORnet®, The National Patient-Centered Clinical Research Network.  REACHnet is funded by the Patient-Centered Outcomes Research Institute (PCORI). 

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