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Clinical Data Research Network (CDRN) – A network involving two or more healthcare systems, such as hospitals, health plans, or practice-based networks that securely collect health information during the routine course of patient care (e.g. LaCDRN).
Common Data Model (CDM) – Standardizes the definition, format and content of data across participating data partners so that standardized applications, tools and methods can be applied.
Comparative Effectiveness Research (CER) – A type of research that compares different treatments, tests and procedures to determine which work best for which patients.
Diabetes – A condition characterized by hyperglycemia (i.e. high blood sugar) resulting from the body’s inability to use blood glucose (i.e. blood sugar) for energy. In Type 1 diabetes, the pancreas no longer makes insulin and therefore blood glucose cannot enter the cells to be used for energy. In Type 2 diabetes, either the pancreas does not make enough insulin or the body is unable to use insulin correctly.
Federally Qualified Health Centers (FQHC) – Healthcare organizations that provide healthcare services to everyone regardless of their ability to pay or insurance status. FQHCs qualify for enhanced reimbursement from Medicare and Medicaid, as well as other benefits. FQHCs must serve an underserved area or population, offer a sliding fee scale, provide comprehensive services, have an ongoing quality assurance program, and have a governing board of directors.
Greater New Orleans Health Information Exchange (GNOHIE) – A community-based health information technology infrastructure that stores health records electronically and facilitates care coordination across health systems in New Orleans. Primary Resource
Health in Our Hands (HiOH) – A patient network within LaCDRN, which will ensure that patients are engaged in a meaningful way and have a voice in the research process.
LaCDRN Advisory Group – A group of patients, clinicians and researchers who meet to generate and prioritize patient centered research ideas, identify patient reported outcome measures, review research studies, and help disseminate and implement research findings.
LaCDRN Community Health Advisory Board (CHAB) – A group of patients and community members who provide community insights and their own experience to ensure patient-centeredness in the governance of the LaCDRN.
Louisiana Clinical Data Research Network (LaCDRN) – A project that brings together 5 organizations (LPHI, PATH, Ochsner, LSU and Tulane) to enable patient-centered clinical research and to facilitate the creation of learning healthcare systems through building a health information technology infrastructure.
Louisiana Public Health Institute (LPHI) – A statewide, non-profit organization with a mission to promote and improve the health and quality of life in Louisiana through public-private partnering at the community, parish and state levels.
Patient Centered Outcomes Research Institute (PCORI) – An independent, non-profit organization with a mission to fund research that will provide doctors and patients with the evidence-based information needed to make better-informed healthcare decisions.
Patient Centered Clinical Research Network (PCORnet) – A large, highly representative, national network formed by 11 CDRNs and 18 PPRNs for conducting comparative effectiveness research.
Patient Generated Data (PGD) – Any health-related data – including health history, symptoms, biometric data, treatment history, lifestyle choices, and other information – created, recorded, gathered or inferred by or from patients or their designees (i.e., caregivers) that can be used to help address a health concern.
Patient Reported Outcomes (PRO) – Any report of the status of a patient’s health condition that comes directly from the patient, without interpretation of the patient’s response by a clinician or anyone else.
Principal Investigator (PI) – Lead scientist for a research project.
Research – A systematic investigation, including research development, testing and evaluation designed to develop or contribute to generalizable knowledge.
Translational Research – Translating new knowledge and techniques generated by research into new approaches for prevention, diagnosis and treatment of diseases.
CDRN: Clinical Data Research Network
CDM: Common Data Model
CER: Comparative Effectiveness Research
FQHC: Federally Qualified Health Center
GNOHIE: Greater New Orleans Health Information Exchange
HiOH: Health in Our Hands
CHAB: LaCDRN Community Health Advisory Board
LaCDRN: Louisiana Clinical Data Research Network
LPHI: Louisiana Public Health Institute
PRO: Patient Reported Outcome
PCORI: Patient Centered Outcomes Research Institute
PCORnet: Patient Centered Clinical Research Network
PGD: Patient Generated Data
PI: Principal Investigator