Adult Congenital Heart Disease Study

The Adult Congenital Heart Disease (ACHD) study is led by the Louisiana Public Health Institute in partnership with Children’s National Hospital and seeks to establish a congenital heart disease (CHD) surveillance program through PCORnet to understand the impact of gaps in recommended care in CHD patients and create a cohort of patients of various CHD disease subtypes for prospective studies. Participating REACHnet sites include Ochsner Health and University of California at San Francisco.