Patient Centered Outcomes Research Institute (PCORI) – An independent, non-profit organization with a mission to fund research that will provide doctors and patients with the evidence-based information needed to make better-informed healthcare decisions.

Patient Centered Clinical Research Network (PCORnet) – A large, highly representative, national network formed by 11 CDRNs and 18 PPRNs for conducting comparative effectiveness research.

Patient Generated Data (PGD) – Any health-related data – including health history, symptoms, biometric data, treatment history, lifestyle choices, and other information – created, recorded, gathered or inferred by or from patients or their designees (i.e., caregivers) that can be used to help address a health concern.

Patient Reported Outcomes (PRO) – Any report of the status of a patient’s health condition that comes directly from the patient, without interpretation of the patient’s response by a clinician or anyone else.

Principal Investigator (PI) – Lead scientist for a research project.